Nutrition in Duchenne Muscular Dystrophy

Nutrition in Duchenne Muscular Dystrophy

November 7, 2019 0 By William Morgan


challenges regarding Duchenne and
nutrition are complex and difficult for
families and for guys with DMD
themselves to navigate because you know
really we are most of us in a position
where we’re we can be picky eaters and
there are things that we like and there
are things that we don’t like and maybe
we don’t always make the best
nutritional choices to keep our bodies
as healthy as possible but having DMD
makes it more both more complicated and
more difficult because you have guys who
are typically more picky with their
eating and it just that is just the way
it is but also we have guys who are much
more prone to perhaps gaining weight
while they are taking steroids or for
strength or even just gaining weight
because they’re not moving around as
much and we also have to think about how
if your muscles are weaker and then
you’re carrying more non muscle weight
it actually can make it more difficult
to move your body around and it can
reduce your mobility as guys with DMD
get older we become more and more
concerned about their maintenance of
weight and maintenance of adequate good
nutrition as well things like having
problems with feeding yourself can make
it so that even though you don’t notice
that you’re eating less during the day
your nutritional intake can go down
significantly because you’re dependent
on other people to help feed you in
those cases we’re very concerned that we
find ways to help select diets that are
appropriate that can get the right
amount of caloric intake the number of
calories the amount of energy into the
body as well as the importance of
getting the right nutrients into the
body as well
so this is why nutrition in older guys
with DMD is so critically important and
is almost kind of opposite what we think
about when we think about young guys who
are trying to keep the weight off so
from the standpoint of maintaining body
weight it really helps the whole
constitution of the body in terms of
resistance to disease maintenance of
strength if your nutritional intake
isn’t adequate one of the things that
your body likes to do is focus on high
nutrition tissues within the body which
can include not only fat but also things
like muscle so if you’re not getting
enough nutrition from dietary sources
your body actually starts to use your
own muscle as a source of nutrition as
well we really don’t want that to happen
in people with DMD because we’re trying
to conserve that muscle already so
nutrient intake and adequate caloric
intake is super important and all people
with DMD and especially in our older
guys